It's interesting, isn't
it? Fibromyalgia Awareness Day is one day a year (May 12) but you live with
fibromyalgia 24/7/365. So think about it. If you knew that fibromyalgia was
accurately depicted, would you be as reluctant to acknowledge your own
fibromyalgia with people?
It takes too much energy to even try to bring fibromyalgia awareness to people or doctors who aren't willing to listen. They cannot understand something on which they automatically place a judgement. That is exactly why we do this, AND why we stand against poor and inaccurate portrayals of fibromyalgia in a tv commercial for instance.
As I often say, the
commercials for fibromyalgia medications have to be inaccurate, otherwise they
couldn't sell a medication for it. What they have to do is to “simplify” the
condition to be able to promote a medication. Fibromyalgia is a multi-system-condition,
and for many people, comes with the primary co-conditions of Chronic Fatigue
Syndrome, and Multiple Chemical Sensitivity.
I know many people who get so discouraged by the lack of understanding, that they tend to shy away from speaking about fibromyalgia awareness. That isn't necessarily a bad thing. But again, that is why we do this, and why it is important for this cause, and your sanity when living with fibromyalgia.
It can be good to avoid
speaking too much about fibromyalgia and symptoms all the time because we don't
want that to be our focus. We know that what we focus on gets bigger, so
let's be sure to keep that in it's place. We focus on solutions here but never
false cures or quick fixes. We stand
against scammers and anyone who doesn't work with or understand fibro trying to
sell quick fixes.
Now, it is only bad because we should be able to acknowledge any condition we have without worry of the stigma attached. Many people I talk to with fibromyalgia say that it just takes too much energy to talk about their condition to people who just don't get it. As a practitioner living with fibromyalgia and it's primary co-conditions since a young age, and now at 50, I certainly get it and that is exactly why we do this. You have enough on your plate without having to defend your condition.
From the beginning, our
two primary goals remain the same:
1. Creating a more accurate depiction and portrayal of fibro for fibromyalgia awareness
2. Helping anyone living with fibromyalgia and co-conditions to live the best quality of life possible.
We believe it is
essential to depict fibromyalgia in the most accurate light possible. This is a
multi-system condition. There is too much misdiagnosis, and this only hurts the
cause. For instance, one component of fibromyalgia is Chronic Myofascial Pain; however, many people today have Myofascial Pain without having the full diagnosis
We also have to be careful not to attribute every symptom to fibromyalgia. We don't want to miss another condition, but again, there are many symptoms that are directly or indirectly due to fibromyalgia itself.
However you decide to share fibromyalgia awareness with those around you, we are glad that you are here and that you share our “passion” for accurate awareness regarding fibromyalgia and it's primary co-conditions.
We often talk about the
the “nature” of fibromyalgia and how it is unique in the fact that symptoms in
one area of the fibro body can “activate” symptoms in another system of the
body. You may find this out during weather changes or when you have another
sickness, injury or any trauma to the body. With fibromyalgia, it may take you
longer to heal or to regulate down those stress hormones. You might find that
sensory reactions to light, sound or toxins seem to linger longer when living
However, the longer you live with fibromyalgia, the more you become aware of your triggers and the many ways that symptoms can be “activated” in the body; but,you also know what works to mediate symptoms, despite the complexity of it all.
As always, thank you for being here and helping us to spread more “accurate awareness” for fibromyalgia.
~ Fibromyalgia Symptoms List
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